Nerve Matters Blog
Welcome to NervGen’s Nerve Matters Blog. First and foremost, you should know that this space isn’t about the science – I’m going to leave that to the people who actually understand the science. This blog is about the story – well, stories.
Every company has a story. But the narrative that shares how a company is built and how a company is born often offer two vastly different perspectives. Pharmaceutical companies, like this one, are built inside laboratories on the shoulders of scientists and advancements in technology along with the business savvy minds of entrepreneurs. But they are born out of purpose. We want to show you our purpose – the reasons behind the science.
When we talk about disease and injury, we often focus on the facts and disconnect from anything personal. But there is a real person behind every diagnosis – with an arsenal of memories and plans for the future. They have families and friends. They parent, go to work, socialize, exercise and binge-watch Netflix, all while simultaneously managing the ongoing symptoms and residual effects of their conditions. Let us tell you their stories.
Keep exploring this blog to meet the people and understand the conditions that motivate this company.
– Codi Darnell
Life, Love and Alzheimer’s – A Daughter’s Perspective
The dynamic of a child-parent relationship is one that shifts many times over a lifetime. It twists and turns as children become adults and parents go from hero to human. Read more …
The Outdoor Diaries Part 2: Handcycling Into the Forest
The world is full of natural wonders we don’t expect to see in our lifetime. Even the most dedicated of outdoor enthusiasts can’t see every mountain, ocean or forest that stretches around the earth’s surface. But for someone with mobility issues, the outdoor environment in your own backyard can feel just as unattainable as one on the other side of the world. Read more …
Adding Diverse Voices to the MS Conversation
Inclusion, diversity, representation – these words are everywhere. We are living through a time of social change where people of all backgrounds are not only working to be seen and accepted but are being sought out to give their perspectives. From POC and those in the LGBTQ+ community to individuals with disabilities and chronic conditions, our stories are … Read more …
The Outdoor Diaries Part 1: Hiking With MS
Why do we go outside? There is a lot of research that tells us about the benefits of being outdoors. It’s a stress reducer and a mood booster, it helps to relieve anxiety and increase focus and has even shown to have positive impacts on blood pressure and immune systems. But most recently, getting outside has been a lifeline. Read More …
Creating a Community: Meet the WAGS of SCI
April 13, 2021
Every relationship has its quirky irregularities that feel unique to a couple. But when the inner-workings of your partnership go beyond small, unconventional differences – such as when your partner has a spinal cord injury – it can become isolating. You turn to Google, typing in questions to help you find someone who gets it, someone who can prove to you that you aren’t alone. Read More …
Mobility Aids: Erasing the Stigma
The first wheelchair I sat in was bright yellow, covered in duct tape and, judging by its size, meant for a large man. As it turns out, most wheelchairs stocked inside a hospital storage room aren’t waiting for someone 5’2” tall. My feet hung down but didn’t make contact with the footrest, and the entire thing was heavy making it difficult for my newly injured body to propel. Read More …
Balancing Marriage and Multiple Sclerosis: A Couple Takes on MS
Once upon a time, two people with multiple sclerosis (MS) fell in love and lived happily ever after. As Dan and Jennifer say on their website, A Couple Takes on MS, movie writers would never dream up that fairy tale. But real-life love stories, like this one, trump any fairy tale I’ve ever heard. Read More …
Oh Hello Alzheimer’s – A Caregiver Spotlight
March 2, 2021
Photo credit: Daniel Brehant Photography
Lisa and Peter Marshall have a love story that spans 20 years. For eight of those years, they sustained a long-distance relationship so as not to disrupt their children’s lives – crossing states to see each other every weekend they could manage. Read More …
Perspective is a New Diagnosis
February 16, 2021
It only takes a few words to tip a life onto its axis. , “You have [insert your diagnosis here]”.
Whether it’s your own condition or that of a loved one, suddenly life has a definitive before and after.
Read More …
